The Oxfordshire Branch provides help and support to those people affected by Motor Neurone Disease in the area through two main groups.
There are currently six trained Association Visitors in Oxfordshire, all of whom are volunteers. Most have direct experience of caring for a friend or relative with MND and are aware of the practical, financial, and emotional issues, the implications of living with the disease and the problems this can bring.
The Association Visitors Group covers the whole of Oxfordshire and nearby counties where no visitor is available. Visitors can come to your home, maintain a link by telephone or e-mail, or all three – whichever suits your needs.
The Group meets regularly to keep up to date with events, and usually the Regional Care Development Adviser (RCDA) attends these meetings. The Group also has direct contact with the Oxfordshire MND Care Centre.
We urgently need more volunteers to become Association Visitors. For further details please contact our Association Visitors Group Co-ordinator via our Branch Secretary.
Family and Friends Group
A support group known as the Family and Friends Group meets regularly, usually at the Holiday Inn, Peartree Roundabout, Oxford. People with MND, their family, friends and carers find a warm welcome at the meetings which include a short talk on subjects of interest. There is always plenty of time to share experiences and socialise over a cup of tea.
Association Visitors, the Regional Adviser from the National Association, committee members of the Oxfordshire Branch, staff from the Motor Neurone Disease Care Centre in Oxford, and other local health specialists often attend and there is time to talk privately about concerns.
For further details, please contact our Family and Friends Group Co-ordinator via our Branch Secretary.
Regional Care Development Adviser
The Regional Care Development Adviser (RCDA) is a full time member of the Association who has detailed knowledge of the care and management of Motor Neurone Disease. Working very closely with local statutory services and community care providers RCDAs are able to provide support and advice to people with MND and their families. They are also supported by a number of trained volunteer Association Visitors who themselves offer caring, practical support to people with MND and their families.
For further details, please contact the RCDA for this area (covering Oxfordshire, Berkshire, Buckinghamshire, Northamptonshire, and Bedfordshire).
Volunteer Development Co-ordinator
Volunteer Development Co-ordinators (VDC) are regionally based staff who provide advice and support to Branches and other Volunteer groups and also encourage and help to set up new Branches and groups.
For further details, please contact the VDC for this area.