The NICE guidelines on MND and their implementation explained at the 2017 Branch AGM and Lunch

May 25th, 2017

Hilary FairfieldHilary Fairfield, Thames Valley Local Delivery Team Manager, was invited to speak after lunch following the branch AGM this year. She has been involved with the making of this hugely significant document which was published after four years of campaigning and collaboration. It sets out in detail what good care looks like and how it should be delivered by those providing care and support to people living with MND, their families and carers. A summary can be found on the Association website. It has been endorsed by many important professional bodies such as the Royal College of Nursing and the Royal College of GPs.

The guidelines help health and social care professionals to assess how their service measures up against the NICE guideline and allows them to identify weak spots and develop plans to continually improve the quality of their care. An audit tool is being developed for health professionals to check this.

A pocket size guide called “What you should expect from your care” is a reference for families and carers to use. It summarises the key elements of care that people living with MND should expect to receive. It is hoped that it will enable them to use this in discussion with the health and social care professionals who provide their care. Pick one up at branch meetings or contact MND Connect 0808 806262 or order online from

And at the AGM …. Michelle Ward, the Chair, reported on another busy year for the branch

Family and Friends meetings continue to be well supported and included another very popular visit to the F1 team at Grove and informative talks about research and disability entitlements and grants, a visit to Benson riverside café and afternoon gatherings at Sue Ryder Hospice. The branch aims to support people between meetings by keeping in touch by email, phone and visits as needed. She announced that there had been a variety of fundraising events including a very generously sponsored cycle ride from Land’s End to John O’Groats by treasurer Mike Beaumont, concerts sales, an exhibition and another very successful branch walk in Blenheim Park. These all raised awareness for MND as did participation in the Parliamentary Reception in October by herself and Anthony Shepherd. She thanked all the volunteers for all their help and all the many donors and fundraisers whose efforts do so much to enable the branch and the association to continue to give support and care to those affected by this disease and also to fund research. The branch would welcome more volunteers to help with fundraising, raising awareness and also with supporting people with MND at meetings or individually as Association Visitors. She concluded by launching the 30th anniversary year of the branch and encouraging supporters to contribute to 30 events to mark the occasion.

Mike Beaumont in his detailed treasurer’s report announced that the branch’s income had increased from last year. £10,707 had been spent on care and support and transfers to national office were about equal to this.

The committee were thanked for all their input and it was announced that Matthew Jones would stand down. Fortunately he is willing to continue his input by producing the newsletter which is much appreciated. Community Matron Liz Lewis, whose experience will be a great asset, was willing to join the committee and was elected along with the rest of the existing members. A new keen fundraiser, Jill Garner was introduced and warmly welcomed to the branch.