Emma Hoggins, dietitian at the Oxford Nutrition Clinic, came to speak at our Nutrition Forum held at the Family and Friends meeting in May. Good nutrition is an important factor in keeping as well as possible and ideas and suggestions were discussed.
The well-illustrated new publication from the MND Association, Eating and drinking with MND: information, tips and easy swallow recipes is available online at www.mndassociation.org/eating or a hardback copy by request from MND Connect: 0808 8026262
Here are Emma’s impressions of the International Symposium
Over the four days that the MND International Symposium ran, I have never before felt so inspired about the research that is going on around the world, the patients whose stories were shared and the healthcare professionals working in MND. It was interesting to learn about the differences in MND management internationally and on a smaller scale, but particularly relevant, nationally. The opportunity to network with other MND Specialist Dietitians was by far the most valuable experience for me. We were able to discuss our services in detail and identify the similarities and differences and then further explore, troubleshoot and recognise areas for improvement. By doing so, we were able to also acknowledge the positives in our service and where we did well, which is always encouraging! We shared relevant research with each other as well as anecdotal evidence and practice in ‘real life’. It is comforting to have a support network that I can discuss complex cases with and get ideas from. Dietetics is a small world and there aren’t very many of us. We are hopeful to plan reciprocal visits to each other’s MND care centres in the not too distant future.
Amongst some of the outstanding research presented at the symposium was some work by the MND team at Addenbrookes Hospital in Cambridge, regarding percutaneous endoscopic gastrostomy (PEG) placement and how they have adapted their procedure to be able to safely carry out this for patients with MND. There are significant procedural differences in Cambridge and so I am looking forward to discussing their findings with our team in Oxford and comparing them with our own. Following from my experience, I would be keen to implement an MND research project and present it at the next symposium.